| 1991 | Formed by 12 parents who met at a George Eliot Hospital, Nuneaton, who decided to create a support group. |
| 1993 | Charitable status was achieved in November 1993. Initially the Charity had about 28 members located throughout the UK. |
| 1994 | The Charity gained a short piece on the Lorraine Kelly show on commercial TV in October 1994. Immediately following the TV slot the telephone rang constantly for days and membership shot up to over 200 families within a week. The Charity continued to grow via publicity in a range of newspapers and media, and was registered with the Charity Commission of England. |
| 2014 | In 2014 Trustees decided to restructure the Charity into a Foundation from its original Association status in order to become more streamlined and more flexible, and able to respond more appropriately to consultations and proposals. The Erb’s Palsy Group also adopted Charitable Incorporated Organisation status at this time. |
| 2019 | The Charity currently (2020) has a membership of over 2500 and is totally volunteer-run. There are currently 6 Trustees on the board: Karen Hillyer – Chairman Debbie Robinson- Deputy Chairman Clair Hemmings – Secretary Gary Hillyer – Treasurer Jackie Dewdney Amy Swift |