This was our first Fun Day with the Erb’s Palsy Group and to be honest we didn’t know what to expect. We were eager to attend to meet some of the trustees and personally thank them for everything they have done for us and our family and most importantly our little Sophia. The activities set out were outstanding, absolutely everything was so well thought out and we were quite honestly overwhelmed with how much there was on offer! After a long drive we felt really nervous walking in but we were greeted by Jackie who was as lovely as she has always been in every conversation I’ve ever had with her (and there’s been a lot ha-ha) she immediately made us feel like we’d come home and we were amongst family.
Having never met anyone other than our Sophia with Erb’s or any other parents/carers with a child with Erb’s, we felt a bit overwhelmed. We were finally somewhere where everyone knew how it felt, what Erb’s meant and that was a very emotional experience for us. Beautiful but emotional. We were in awe of children climbing the rock wall and watching their determination. We were amazed by the strength, courage and bravery of so many individuals all with huge smiles who gave us comfort and joy.
I’m not ashamed to admit the journey home we reflected and I shed a few tears. We were filled with such love, such comfort, such knowledge and compassion. We felt humbled to be in the presence of so many amazing people. We felt we could learn from their courage, their determination. We needed a day like this having buried a lot of our emotions and feelings surrounding the trauma of Sophia’s birth and her injury. We just went into autopilot and this fun day woke us up.
Thank you to everyone involved for making a day so special it will remain with us always. Thank you for allowing us and encouraging us to be a part of a huge special day. We can’t wait to attend the next and the next and the next ha-ha. We hope that as Sophia grows these will be memories she will cherish forever. We will never forget our first Fun Day with you all.
Thank you for being our Superheroes!
With love from Stacey, Hayden, Mia-Ella and Sophia x
Sophia makes a splat picture !